Tuesday, April 26, 2011

A Christmas Story-UPDATED

You know that moment in A Christmas Story when the Bumpis's dogs trample the house and ruin the turkey. No turkey dinner, no turkey soup, and on and on. That is me. Now. This weekend was horrible. I don't want to say the worst because I have a fear now of tempting the fates to screw with me. Friday after I posted I went to bed. I ended up with a headache (I had called the office after we left and the nurse said I couldn't take Imitrex, but I could take advil). Since I am a WEB-MD I looked it up and everything said not to take Advil with Methotrexate cause it can effect your kidney and liver. By Saturday around 5 I was so Nauseated and Migraine filled I called the on call doctor--he said I could take my imitrex and maybe only one advil ( I usually take imitrex and 2 advil--because that is Treximet (that my insurance company won't cover)). I was so so relieved, and after I took the med I felt better---and went to sleep. Sunday (Easter) I woke up with a headache and HORRIBLE nausea. I called the on call again to call me in something for the nausea, which they did. And I took my migraine med and the nausea med --which is good because the first side effect on the nausea med--was "May cause Headache". Later in the night my migraine came back with a vengance and I was just in HORRIBLE pain. So, I tool the migraine med and the one advil and it subsided. I was so afraid to go to work on Monday that I stayed home. And to boot I didn't really eat anything Sat or Sunday due to the nausea. I did eat yesterday but you have to watch your intake of Folic Acid since Methotrexate is meant to deple folic acid. If you eat some folic acid it may make the medicine less effective. Back to the Christmas Story reference. I missed Easter. The whole thing. GONE. Like Sunday was just another day. I hope nobody today or for the rest of the week asks how my Easter was because I might end up in tears. That's another thing--TEARS. I don't know if it is a side effect of the med or my real emotions--but as of Friday night I was as weepy as a willow tree!

I went for bloodwork today and they say it will fo up 15%--I am making a chart and I will post it after I get the number. I hope it didn't go up more than 15%. I just couldn't even face having another shot or worse--surgery --after all of this. I did get the call to make my WTF appointment with my doctor. It is May 25th. The nurse said, the doctor wants to make it soon, in the next few weeks. For what? What is the rush now? Oh wait, I know, to be really positive and help us, get back on the horse I bet. As bitter as I am at the situation though, I know it has very little to do with them. They are actually great. RESOLVE is promoting this teleconference tonight about HOW TO BE THE PERFECT PATIENT. I signed up for it, it's tonight, but I don't really believe in perfect, so I might pass on it.  At least by May 25th the weepy-ness will have passed, I want answers and a plan, not sympathy form my doctor.

Just to wrap up I need to say that this bought of holidays has really been crap.
Thanksgiving 2010- FLU
Christmas 2010 - Stomach FLU (the day after)
Easter 2011 I don't even want to think about.

My hope-- a low number on Friday--I am not being dramatic when I say that I am too tired of this process and need to see a low number. (oh, and no ruptures at all please).

UPDATE: Just got the call. 500 (37% increase) --WTF! My nurse was basically begging me to start bleeding! She was sweet though--she said she knew they gave me the shot on Friday (cause they let her know on Friday) and she was really sorry. She said she would be SO EXCITED for me if I call her to tell her I am bleeding. She said, 'nothing, Not even a drop?' NOTHING. She said, does it feel like you are going to start, any cramping or anything? NOPE. I told her there is no way I can get another shot--she said that they would do an ultrasound before they did the shot again IF I need it the shot.  I asked her WTF about the 500--I thought it was supposed to be 15%--and that was more than 15%, she said the numbers go all over and they look for 15%, but any increase is expected. PLEASE PLEASE PLEASE PLEASE go down numbers....PLEASE, period like bleeding! PLEASE PLEASE. I am craving chocolate so maybe that means I am going to start bleeding? My nurse did say, this is taking longer than she wanted. Again, me and my nurse, we want the same thing!

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